|
Dr. X, I cannot keep up with you for sure, nor can I argue your statements. I will say a couple things about my experiences. My doctor was shocked when they diagnosed me, I had no symptoms other than the sometime severe pain that put me on my knees. I had a physical every year, no symptoms. The Benz Jones factor in my urine showed small numbers even after diagnosis, so that was not a factor. Most all MM patients I talk to were diagnosed after routine blood test during a physical. Again, I had no symptons. Xrays of the hip showed only some ligament damage. The tumors do no show up in regular xrays. After about one yr. of this, finally, and I say finally, they gave me an MRI. This only showed a small shadow, which they followed up with numerous angle shots. Boom, there was this 15 cm tumor sitting in my left pelvic bone. Either someone goofed up or as they have told me right along, I have an unusual MM. As you know, bone tumors are very hard to see with xrays. My long bones showed very little in the way of tumors. Bone marrow biopsies proved it had gone into the bone marrow. So in my case,, different. You described the Myeloma tumor as it was described to me, bloody and dangerous to biopsy. A cat scan biopsy was successful with no problems. Dealing with pain was never a problem with me, however, I know there is pain, in the head pain, and pain, very real pain. The pain in my hip area was real, uncontrolable , meaning my unability to shut it off. Other pain?? Kidney stones. 3 times,,first time worse pain I ever experienced. The next times, not so bad. As far as the treatment taking away my pain. That can't be true. I have had no drugs, no treatment whatsoever since my transplant Dec. 6, 1996. NOTHING. no chemo, no radiation, nothing. When I saw Steve, it was around 6 to 7 months after xplant. Suddenly,,overnight the treatment took away the pain? No, I don't believe that. Did my mind take away the pain?? No, I didnt believe Steve would help me anyway. Sorry, but no one will ever convince otherwise,he was able to do something,,I have no idea what. No one will convince my wife,something took away the pain and allowed me to walk near normal, overnight ,,. There is no proof?? To me I am the proof, I will recommend Steve to anyone willing to try. And again I say, what can it hurt?? Will he give me a different cancer or give me the mumps or something? Hasn't happened yet. I have not been back to Steve, but if I need him he is there for me. Just because it's not in a book, doesn't necessarily mean it won't work. Bill
|